13.1 is just a number to anyone who looks at it but for me
it just more than a number. 13.1 is the
size of my deletion. I only found about
the size of my deletion this year in March.
That is 80% of chromosome missing but being a mosaic only 30% of my blood
are affected, I have no idea about the rest of my body cells and which is fine
with me. I have always wanted to know
about the size of my deletion. Even
though I am mild CDC still does affect me like my speech, the way that I walk
and sensory overload (for those people who are going to the conference next
year please be aware at the banquet on the Saturday night I might be playing on
my gameboy or my ipod because I need some time out because my sensory overdrive
will be working overtime.) I still need
help in doing certain areas in my life and I celebrate every mildstone that I
achieve it maybe different from my CDC brothers and sisters but it is still a
mildstone to me in my life. I want to
change people’s minds about what CDC children/teens/adults can do and what they
CAN’T do. Even though I have a large
deletion but only 30% of my blood cells have the wonky choromsome. 13.1 is just a number to me it doesn’t change
anything about me.